Friday, September 28, 2012

Almost at the end of turning

Not that we are counting or anything, but Caleb has only 16 days left of his turning schedule : )     Chances are that we will probably continue to lengthen and get another turning schedule as he will only achieve 5cm of growth at the end of this schedule and we would like to get 7cm. It is still exciting to almost cross this milestone, though. As John Robb, Dr. Paley's PA once said to us.....5cm is the goal with Caleb's lengthening......everything extra is bonus points. We would love to get an extra 2cm even if it means we would be turning for another month and a half. Once Caleb is finished with the turning stage, we will then be in the consolidation phase, and PT will be cut back to 3 days a week. During the consolidation phase Caleb is still in the fixator but we are no longer turning struts. His leg is starting to look really long these days. It's kinda fun to see the progress that we are making. I even think he looks taller! Technically he is getting taller........ 4cm to be exact!! We had our 2nd appt. with Dr. Paley two weeks ago. Our appointment was scheduled for 8:45am but we got there around 9ish. You really have to come prepared with a whole lot of patience when you have an appointment with Dr. Paley. We didn't get to see him until almost 4pm. My kids were just about bonkers by the time we left.

There were a lot of new patients in the waiting room that day with their babies asking all kinds of questions to us 'seasoned' mom's and sitting there waiting to just catch a glimpse of Dr. Paley. I guess he is sort of a celebrity in our world......the limb deformity world.  I actually felt like things were starting to come full circle. It was really just yesterday that I was sitting in their seats.....so full of questions......and scared beyond belief. Here we are today, and minus a few bumps in the road, Caleb is doing fantastic. I wish I would have known that then. Dr. Paley's team is the best........you have to trust in that and get ready for the long road ahead, but know it will all be okay.

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