Hi Friends and Family! I want to express to you my sincere gratitude
for all of the support that we have received these last few months during Caleb’s
first limb lengthening procedure. These last few months have been the longest
of my life (I can’t imagine what it has felt like for Caleb), but in addition to
that they have also been life changing for our family and I can’t even begin to
explain the ways in which Caleb’s life has been forever changed.
Yesterday, I am happy to report, was our last night of
turning! Whoo hoo!! Today, Dr. Paley confirmed that he is very happy with Caleb’s
progress and we are no longer lengthening or correcting his foot positioning. We have reached 6cm total in lengthening. We
are in the next phase of the lengthening, which is called consolidation. We will be continuing with our weekly physical therapy and Caleb
will have the fixator on for the next 3 months, give or take, but the
lengthening phase is over. Thank you, God! From this point on, things should be
getting easier for him. Thanks to all that have been following Caleb through my
blog and/or Facebook these last few months. The support and love has been
humbling. You all have gotten us through
a lot!
On December 2nd, Caleb will be participating in the annual 5k race and even if we are pushing him in his wheelchair, he will be crossing that finish line alongside Dr. Paley, Dr. Paley’s team, and lots of other Paley kids. This is a very exciting event for us because it is our chance to give back to this great cause. DONATE HERE:
According to the March of Dimes™, 1 in 125 children are born with a limb deficiency and 1 in every 10 individuals receives the diagnosis of a rare disease. The Paley Foundation is committed to developing and teaching new techniques to save and reconstruct the limbs of children and adults and eliminating the need for amputation, whenever possible, among those who suffer from rare limb deficiencies and other complex orthopedic conditions.
The Paley Foundation strives to improve the lives of children and adults who suffer from rare and challenging congenital, developmental and post-traumatic orthopedic conditions throughout the Nation and the world.
In carrying out its mission, the Foundation seeks to:
- Teach and mentor orthopedic surgeons throughout the world in the application of advanced techniques
- Develop specialized treatments for children and adults with rare and complex orthopedic conditions
- Advance public awareness of innovative medical procedures for the treatment of rare and neglected bone diseases, limb deficiencies and skeletal abnormalities.
- Ease the burden on children and families who have sought such care.
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