Friday, July 27, 2012

The Family

FH does not just affect one person, it affects the entire family. We are lucky enough that we live somewhat close to the Paley Institute where Caleb is going daily for treatment.  While gas and driving time has been somewhat crazy, the majority of families come from elsewhere. We realize that lots of families have to either pack up the entire family and relocate for a few months or they have to temporarily separate from their families during treatments. We are grateful for our circumstances even though it is not without lots of challenges. 

It goes without mentioning that our whole family has had to make lots of adjustments during this time, especially Caleb's siblings. We have had to rely heavily on family to take care of Nora, age 5, and Lila, age 2, while we have gone to PT appts. Although they are having a blast with everyone that has been taking care of them, they have never been away from me this long. Nora has even asked why I haven't been spending time with her lately and so much with Caleb. God bless her. It's hard to explain to a 2 and 5 year old that the 7 year old needs me the most right now. Caleb's 14 year old brother, Zack, is also sacrificing a chunk of his summer as I've been very preoccupied with Caleb. I've not been able to take him places and/or have friends over because our schedule is absolutely crazy right now. I know that as Caleb continues to adjust and improve, we will fall back into a routine and I'll be able to spend more time with my other kids. I hate that they are feeling neglected by me. 

  Again, thank God for our amazing family and friends that have been picking up the slack. A LOT of slack. We couldn't do this without them.

If there is one thing that I have learned so far is that this whole process is a HUGE commitment not just for us, but to the entire family. We love each and every one of you that has been helping us so much during this time.


The girls out for the day with their Auntie Leah while Mom and Caleb are at PT. In this picture they are at Plaster Castle.


The girls had lots of fun doing different water activities.




Lila gets to have some fun at the playground!


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